Sunday, March 18, 2012

Joy!

So far 2012 has been hectic, full of Griff traveling, shocking medical news (if you don't know what I'm referring to look at my post "You Had A Stroke"), many doctors appointments, tons of blood work, loads of prayers, trusting God and unexpected joy.

There has been joy in that all, yes every single test I went through, has come back normal. The ophthalmologist is amazed that I have no long term vision issues. The hematologist is shocked that there are no lasting effects of the stroke. And my neurologist is also surprised by the findings. There is a lot to thank God for and there is a lot to find joy in.

One other "small" thing we are joyful for is that we are expecting baby Jones #3! We are joyful, though we were shocked, to say the least. I had found out January 12th I had had a stroke and was told by the neurologist that I should not try to get pregnant. Little did we know I already was. The following week, on January 18th, I took a pregnancy test that shockingly came back positive. We wanted to add to our family but the timing and everything seemed bad. We haven't told many until now because we just weren't sure what was going to transpire in the early weeks. We are thankful to God for this life and we are truly filled with joy. God's timing isn't bad, it is perfect. He has used the awareness of the stroke and this pregnancy to bring us closer to Him and we are so grateful.

Would you join us friends in praying for a healthy baby? Lord willing, he/she will be due mid to late September. We aren't going to find out this time what we are having since we already have one of each, so we are excited for the surprise to come. Please pray for me and a healthy pregnancy too. I have felt amazing these first 12 weeks, truly amazing. But, because of the stroke this is considered a high risk pregnancy, with the chances of another stroke being possible. I'm not fearful this will happen but would love your prayers for health every step of the way.

Join us in thanking God for the amazing gift of life and all the miracles he has performed through the stroke diagnosis, all the tests and subsequent normal and great test results. This is a miracle!

Wednesday, March 7, 2012

While You Are Gone

Dear Daddy,
You have been in Germany for too long. It is making Ellie very sad.
I am trying my best to share with her because I love her but sometimes it is hard.
Mommy has read us books every night in bed. We like our new quilt that Great Grandma Henry made us.
Ellie got a new hat for Easter. She is wearing it a lot. Sometimes she lets me wear it for fun, but it's pink and I don't really like pink.
We have been playing this really fun car game with Grandpa. We get in our car and he pulls and pushes us around the room. He goes a little too fast for me sometimes but Ellie likes him to go really fast. She even crashed one time and she just laughed, she is funny like that.



I can't wait to have you home Dad. You have a good time there and eat lots of yummy food and get ready to wrestle when you walk through the door (Mom can't wrestle at all like you).
Love you Daddy,
Riley

Monday, February 13, 2012

To Grammy and Grampap's House We Go

We had a great but quick trip to Pittsburgh this past weekend. Of course the one weekend that worked for us to drive out and see family it also had to snow all weekend long. Yuck-o. However, we are thankful for safe travels there and back, for two kids who were absolute troopers trapped in their car seats for the four hour drive each way and for great time with Grammy, Grampap, Nan, and Aunt Do. Oh, and I forgot to charge my camera battery before we left so I only got a few pictures but it is better than nothing. :-)


We had a great time with Nan (Griff's grandma) Saturday morning. Sometimes I get nervous and wonder what two kids, three and under will do at a house with no toys but the kids did awesome! Riley was content to watch cartoons but Ellie had a ball with these little pebbles she found in one of Nan's containers and would just move them back and forth between two jars almost the entire time we were there.


What to say about Aunt Do (Griff's great aunt)...this woman is a spit fire. I love her! We were talking about birthdays and she revealed to us how old she would be on June 5th and I was shocked. This lady looks amazing for living nearly nine decades and she has incredible stories for each one.

Saturday, February 4, 2012

What Makes Me Smile

My Grandpa Struble made this doll bed for my dolls growing up and now the real dolls of my life get to enjoy it. I love watching Ellie put her babies in the bed, cover them up and kiss them goodnight.


Tea time has become an hourly occurrence in this house. My girl loves playing tea and will often include all her friends, Cookie Monster, Elmo, Ernie and her dolly Lucy all join in.
I think kids so bundle up they can barely walk is adorable.
We attempted potty training for about a week. Ellie is still a little young but she loves wearing her brother's Thomas the Train undies over her diaper.

Who doesn't love seeing their husband read to their son. Melts my heart every time.

Thursday, February 2, 2012

An Update

Thank you all for your prayers and words of encouragement. Thank you!

In the last two weeks we have had several doctors appointments and lots of things to be thankful for. I had an ophthalmologist appointment to check my vision and see if anything was affected by the stroke. I have absolutely NO lasting vision problems from the stroke! The doctor was wonderful and very insightful. He was an internal medicine doctor before he became an ophthalmologist, and explained to me that a lot of the human brain isn't put to use. The stroke must have hit a part of my vision section that isn't used. After hearing my history he thought it was the pill that caused the stroke and probably the migraines as well. He told me I was very lucky. I know that it isn't luck but the hand of God that has protected me.

We also had the appointment with the hematologist at the Lancaster Cancer Center. Again our doctor was wonderful and took the time to really answer questions and help us understand things. Though my anti-clotting protein is low she isn't sure that is the real issue. She said it was an old test I had done that could be affected by many factors and she ordered 4 more tests to be done. It was relieving to talk with her and she also thinks this was all due to the pill. Wednesday, when I went in for the blood work it took two nurses and an administrator to figure out what two of the blood test were. They had never heard of it or knew how to key it into the system. I was there waiting for an hour while they tried to figure it all out. But, finally, the blood was taken and I was on my way home. I go back for a follow-up with the hematologist next week and continue to pray for good news.

All this good news has definately helped calm my nerves and ease the anxiety I have been experiencing but the true calm in it all has come from the Lord. It has been a huge help to have people praying far away and even coming here to the home and praying for us. It has helped to fight the anxiety by playing praise and worship music in the home and turning off the TV. It has helped to fill my mind with the truth of God's word and spend less time filling it with facebook. God is using this for good. It has shown me how much I tried to control my life and keep it together. It has shown me how truly exhausting and futal that is. I've been reading A Shepherd Looks at Psalm 23 and it is reminding me how much God loves me and wants to provide for me. He wants me to have rest in green pastures. In the book the author explains that as long as his sheep knew he was there with them they felt safe and they would lay down and rest. But if they didn't see him they would doubt their safety and would run around frantic. I feel the same way. If I focus on Christ and know he is there for me I can rest and go about my day. But, if I take my eyes off Jesus and look at the circumstance I get frantic, I have panic attacks and it effects others. I've got to keep my eyes on Jesus, my Good Shepherd!He isn't just my Good Shepherd but my Savior! He died on the cross for me. He died to save me from my sin and give me peace in this life and the life to come. He died so I could have eternal life with him. If that doesn't say, "I love you," I don't know what does. He doesn't promise in this life we won't have problems. Jesus actually says at one point, "In this world you will have trails. But, take heart, I have overcome the world." So, I am trying to take heart, keep my eyes on him and trust the One who loves me.

Monday, January 23, 2012

"You had a stroke."

Those are the words I heard from the neurologist on January 12, 2012, the day we should have been celebrating our 4th wedding anniversary but instead we spent the night reeling with this news.
For over a year I have been getting horrible migraines. They came on all of the sudden in October 2010 and then kept coming every month getting worse and worse. I started taking the powerful medicine Trexamet. It helped but by help I mean it got rid of the pain and allowed me to function as a mom and wife but it didn't stop the migraines from coming.
In May 2011 I went off the birth control pill thinking that may be part of the problem. I was willing to try anything to get rid of these things. After that they got worse, lasting for about 14 days every month. Friends, this was miserable! For two weeks every month I did little but get by, feed kids and lay on the couch. I wasn't my self, but a numbed version of myself. Jokes weren't funny, road trips were misery and my kids playing loudly in the other room was terrible. I had gone to my family doctor numerous times regarding the migraines and they never suggested any other course of action but just to continue to take the Trexamet and see if they would go away after getting off the pill.
So, I started looking into alternatives like changing my diet. I found out on Facebook from other friends that they did a gluten free diet and it helped them. In August 2011 I embarked on a gluten free lifestyle. Within two weeks I felt a difference and now six months later I feel pretty darn good. :-) I get about one migraine a month which isn't bad in comparison but isn't what I want either. I want NO MIGRAINE living!
I brought up this migraine issue with my OB/GYN and she straight out told me to contact my family doctor that day and demand I get an MRI. So, that is what I did. I had and appointment with my family doctor that night and my MRI was scheduled for Saturday morning. I was nervous but ready for some answers.
The results came back within a week and my doctor called and told me there was some "atrophy on the left side of my brain". She wanted me to get an appointment with a neurologist to look more into this issue. Ok. So, there wasn't a tumor but atrophy, what the heck is that? I called a neurologist to get an appointment and they told me they would get my MRI results and call me back with an appointment depending on how urgent the matter seemed once they viewed the MRI.
Two weeks later I got a call back that my appointment was scheduled for next year, January 12, 2012, that was three months away. I took this as a good sign that things must not be bad since they scheduled me that far out and went about life. The migraines were fewer and fewer and I was hopeful the gluten free diet would completely solve the problem.
Now, back to present day. I'm sitting at the neurologist office with Griff expecting some odd but okay news and the neurologist proceeds to tell me rather matter-of-factly that I have had a stroke. At this point I think my mind stopped working. Thoughts started whirling. I'm 31. How could I have had a stroke. My grandparents had strokes. I'm 31. I'm healthy. Excuse me? What? He went on to explain this probably happened in the last 6 months to two years but it could have happened before that. It possibly happened because of the birth control pill or the Trexamet I was on to get rid of the migraines. I was taken off the Trexamet immediately and tons of blood work was order as well as an opthomolgy appointment (to see if the stroke did any damage to my eyesight) and an echocardiogram was scheduled. We left the neurologist office stunned and weeping.
The next Friday I was called again by the neurologist office and told that some of the blood work had come back and they wanted me to go to the Cancer Center of Lancaster STAT. The receptionist couldn't answer any of my questions and left me thinking I have cancer and I have to sit on this news all week until I see the doctor the following Friday to confirm this horrific news. I broke down. Griff had been out of town all week for work and I was depleted of all mental, emotional, and physicall reserves. I tried to hold it together. I got the kids down for a nap and praise the Lord Griff walked through the door just in time. I was able to get out to him what had just happened and he immediately called the neurology office to get more answers. The nurses couldn't answer anything so we waited for two hours for the doctor to call us back. I'm not ashamed to say I just layed in bed and cried for two straight hours. I let my mind run to "what ifs". I know I shouldn't have but with a call like that it was impossible. The doctor finally called us back and told us that one of the test they did came back low. He wasn't concerned about cancer but rather that my anti-clotting protein was low and my blood may clot easier than normal. Ok. So I don't have cancer. Whew. But I might get a blood clot and die. Seriously, friends, I was overwhelmed and exhausted and I couldn't stop my mind from racing to worse case scenerio.
I have had more anxiety attacks and condemnation in the last three weeks than ever in my life. I have thought I am having a heart attack and dying several times. I've been to Urgent Care and the ER a couple times and each time leave with a clean bill of health. I get scared for my kids and wonder what I would do with them here at the house if something happened. I feel condemnation at times for taking the birth control pill and potentially bringing this on myself. I don't share this for you to take pity on my but rather for any of you out there struggling with anxiety, fear or condemnation to know you are not alone. And also for any woman out there taken the birth control pill to seriously weigh the risks. I knew it could happen but thought I was invinsible. I was healthy. How could those side effects possibly happen to me. I have seen through this experience how blessed we are with great sacrifical friends. We have experience the blessing of community and our church body coming around us, praying for us and helping in amazing ways.
Right after we found out about the stroke and Griff and I were crying in the parking lot he shared these verses with me. I could not take it in then but I do believe they are true and bring me hope now.

John 9:1-3-
As he [Jesus] went along, he saw a man blind from birth. His disciples asked him, "Rabbi, who sinned, this man or his parents, that he was born blind?"
"Neither this man nor his parents sinned, " said Jesus, "but this happened so that the work of God might be displayed in his life..."

I do not understand all that is going on. And I don't like it. I would rather not be going through this or trying to explain to my kids why Mommy is crying. But, I do believe in the Word of God. I believe ALL of it is true. And I do believe this is happening in my life so that the work of God might be displayed. The unknowns of future tests and appointments makes me anxious at times, if I focus on them. But, if I focus on what I know and the unchanging truths of the Bible I can walk in peace. So that is what I am trying to hold on to. I am trying to hold on to Jesus and His unchanging truth. I know regardless of whether I am hanging on or struggling Jesus is and will always be hanging on to me.

"Never will I leave you; never will I forsake you." Hebrews 13:5

Wednesday, January 18, 2012

"Blessings"

This song is called "Blessings" and is written by Laura Story. I have been greatly encouraged and challenged by this song as I think about the words.

We pray for blessings, we pray for peace
Comfort for family, protection while we sleep
We pray for healing, for prosperity
We pray for Your mighty hand to ease our suffering

All the while You hear each spoken need
Yet love is way too much to give us lesser things

'Cause what if Your blessings come through raindrops
What if Your healing comes through tears?
What if a thousand sleepless nights
Are what it takes to know You're near?

What if trials of this life
Are Your mercies in disguise?

We pray for wisdom, Your voice to hear
We cry in anger when we cannot feel You near
We doubt Your goodness, we doubt Your love
As if every promise from Your Word is not enough

And all the while You hear each desperate plea
And long that we'd have faith to believe

'Cause what if Your blessings come through raindrops
What if Your healing comes through tears?
And what if a thousand sleepless nights
Are what it takes to know You're near?

And what if trials of this life
Are Your mercies in disguise?

When friends betray us, when darkness seems to win
We know that pain reminds this heart
That this is not, this is not our home
It's not our home

'Cause what if Your blessings come through raindrops
What if Your healing comes through tears?
And what if a thousand sleepless nights
Are what it takes to know You're near?

What if my greatest disappointments
Or the aching of this life
Is the revealing of a greater thirst
This world can't satisfy?

And what if trials of this life
The rain, the storms, the hardest nights
Are Your mercies in disguise?